2020 FunDrive Moves Online and Launches with Matching Gift Opportunity!
We can’t gather in-person this year due to the challenges of COVID-19, but that doesn’t mean we can’t have fun, socialize, and raise awareness about dystonia while we raise money to support our programs for 2021! Watch our social media pages and blog for upcoming events, social meet-ups, and giving opportunities.
People diagnosed with Dystonia are acutely aware of this debilitating neurological disorder…every day of every month. However, September is the month to raise everyone’s awareness!Read More
We know December is a busy month for many of you, so we are sending our invitation out early…please make plans to join us on December 15th to raise funds for Down With Dystonia while enjoying great food and touring the Automobile Driving Museum at the 2nd Annual FunDrive. At this year’s event, guests will have the opportunity to tour and sit in some of the museum’s 130+ vintage, antique, and muscle cars in addition to enjoying a hors d’oeuvres, entertainment, a buffet dinner, and an open bar.Read More
There are many blog posts about the positive results of Deep Brain Stimulation (DBS) surgery for targeted relief of dystonia symptoms. When considering this procedure, it is important to consider the role of MRI prior to and post-surgery in determining if this treatment is a suitable option for your lifestyle.Read More
In April, Blackbaud Institute for Philanthropic Impact released their study on the Next Generation of American Giving detailing the giving habits of each generation from the Greatest Generation (they call them “Matures”) to Generation Z. This was the third in a series of studies that started in 2010 (studies completed in 2010, 2013, and 2018). Researchers surveyed 1,339 donors from a group controlled to be a nationally-projectable sample of donors.Read More
Honoring Jim Yuransky and his contributions to Down with Dystonia
Close your eyes and imagine a cool natural light lavished space, the relaxing San Diego patio of the artist and accomplished visualization expert, Jim Yuransky. Breathing in, you smell brilliantly bright fresh paint drying on canvases hung at eye level in every direction. It’s easy to stare deeply into his geometric works, finished and in-progress, and find yourself visualizing a new idyllic place altogether. That’s kind of the point. This is the place where Down with Dystonia, and much more, came to be.Read More
Gracious family contributor hosts inaugural Down with Dystonia fundraiser
Last month, the 56th annual Huntington Beach Boat Parade provided a colorful backdrop to the first Down with Dystonia fundraiser, a gathering ten years in the making. As dazzling displays of light and sound drifted across the glassy water outside, displays of love and generosity created an unmistakable buzz of positive energy inside. Welcoming nearly seventy guests, the event wrapped a year in which great progress was made and ambitious goals were set.Read More
Tips on navigating federal disability benefits for dystonia patients
As an organization, one of our key advocacy targets is the lack of explicit dystonia listing in our nation’s Social Security Disability benefits program. The debilitating nature of moderate to severe dystonic symptoms, without a doubt, can negatively impact a person’s ability to work, let alone their ability to function day-to-day.Read More