People diagnosed with Dystonia are acutely aware of this debilitating neurological disorder…every day of every month.  However, September is the month to raise everyone’s awareness!

Dystonia is the third most common movement disorder and yet remains in the shadows of misunderstanding and misdiagnosis. Down with Dystonia, an organization by and for those afflicted, is excited to shine urgent light and understanding on Dystonia.

September is the designated month for Dystonia Awareness.  Down with Dystonia works year-round to raise awareness.  Only when we bring Dystonia into the light will we have proper diagnosis, research for new therapies, and ultimately, a cure.

Please do your part to spread Dystonia Awareness…


  • Forward our emails and website onto family, friends and neighbors!
  • Give us a “Like” or “Follow” on our Social Media platforms!
  • Get involved!
  • Wake up the world to Dystonia today!