The Disorder

Dystonia is a neurological movement disorder that causes muscles in the body to contract or spasm involuntarily. The involuntary muscle contractions cause twisting, repetitive and patterned movements as well as abnormal postures. Dystonia is not a single disease but a syndrome – a set of symptoms that cannot be attributed to a single cause but share common elements. Some forms of dystonia may affect a specific body area, such as the neck, face, jaw, eyes, limbs or vocal cords.


300K +

People affected by dystonia in North America


Most common movement disorder in the U.S.


Chance each child of a parent having the abnormal gene, carrying the defective gene.


We’re Here to Make an Impact

Our mission is to support, educate, and empower people living with dystonia and their families while raising awareness about this third most common movement disorder. Our goal is to provide a platform where patients and their families can learn about dystonia, its symptoms, and its treatments. Ask us about our financial assistance programs.



Improving Quality of Life

Properly treating dystonic symptoms depends on the patient’s age, mental and physical health, type of dystonia, affected body parts, and many more variables. This makes it an especially difficult condition to diagnose and treat. Positive results have been recorded with the use of noninvasive techniques such as breathing techniques, as well as with surgical options like deep brain stimulation (DBS) therapy.



Make a difference

Support the fight against dystonia today with a donation! Your contribution will help fund research, awareness campaigns and support proper diagnosis. We provide financial assistance to individuals living with dystonia and their families to help with treatment, accommodation, or adaptation costs not covered by insurance.

Make a Donation

Your support makes our work possible. A donation of any amount will help raise awareness and support our efforts to transform the lives of those living with dystonia.

Events and Campaigns

It all starts with our family, friends and concentric circles. Please join us as we create a splash and help those with dystonia lead lives full of passion!

Become an Advocate

The first step to getting involved—whether you live with dystonia, love someone living with dystonia, or simply want to help us spread our message.

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