WHO WE ARE
We are a small nonprofit organization with a set of lofty goals. Our biggest challenge is bringing awareness to the general population that those with dystonia, a relatively unknown and yet extremely debilitating movement disorder, can live a productive and fulfilling life. We will accomplish this mission via groundbreaking videos, social media awareness campaigns, and other social media distribution initiatives. It all starts with our family, friends and concentric circles. Please join us as we create a splash and help those with dystonia lead lives full of passion.
It is important for us, as it is for any nonprofit, to be as transparent as possible concerning our fundraising and operational efforts. It is with transparency that organizations like ours can best partner with the public, foster an environment of ideas, and ultimately, make a real difference in people’s lives.
Devin McClernan was diagnosed with dystonia at the age of thirteen. For more than twenty years, his extraordinary journey has provided him insight on how he can use his experiences and talents to cultivate a better quality of life for those afflicted with dystonia.
The people that lead Down with Dystonia come from different backgrounds and all share a common career path that leads them towards helping others. As a group, they are well-informed by varied personal, medical, and professional experiences.
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When you sign up you'll become a member of Down with Dystonia's Activist Network. We will keep you informed with the latest alerts and progress reports.
© 2019 Down With Dystonia - All Rights Reserved. We are designated tax-exempt under section 501(c)3 of the Internal Revenue Code.
Tax ID 46-1319824. Your contributions are tax-deductible to the fullest extent of the law.