WHO WE ARE
Moving Toward a Better Future
We are a small nonprofit organization with a set of lofty goals. Our biggest challenge is bringing awareness to the general population that those with dystonia, a relatively unknown and yet extremely debilitating movement disorder, can live a productive and fulfilling life. We will accomplish this mission via groundbreaking videos, social media awareness campaigns, and other social media distribution initiatives. It all starts with our family, friends and concentric circles. Please join us as we create a splash and help those with dystonia lead lives full of passion.
Our Mission
It is important for us, as it is for any nonprofit, to be as transparent as possible concerning our fundraising and operational efforts. It is with transparency that organizations like ours can best partner with the public, foster an environment of ideas, and ultimately, make a real difference in people’s lives.
Founders Story
Devin McClernan was diagnosed with dystonia at the age of thirteen. For more than twenty years, his extraordinary journey has provided him insight on how he can use his experiences and talents to cultivate a better quality of life for those afflicted with dystonia.
Leadership
The people that lead Down with Dystonia come from different backgrounds and all share a common career path that leads them towards helping others. As a group, they are well-informed by varied personal, medical, and professional experiences.
